Hi, everybody -

Am new to this website and have small fiber non-length dependent sensory neuropathy diagnosed after sudden onset this past January.

Also was diagnosed with Sjogren's the next month, but so far only have sicca symptoms plus this SFSN, which has led my neurologist (at the same facility where my rheumatologists are) to go a little further after a normal brain MRI to also order bloodwork that included carnitine/acetylcarnitine.

It was abnormal, and this might mean a mitochondrial defect (hereditary) that causes neuropathy. The bloodwork will be re-done in a week after I've been off the fish oil capsules for that length of time because fish oil (also coconut oil, etc.) can cause this abnormal result. Bottom line: If the carnitine/acetylcarnitine is still abnormal, then it might not be SjS at all but the mitochondrial defect causing not only the neuropathy but also the sicca symptoms.

Best wishes,

Sheltiemom