Thank you for sharing your story (and your precious family ) with us!
You've found a wonderful place for support! There are many caring people here who can embrace this battle you are faced with.

I got real excited as I read your testimony - about the SCS ...... then it didn't continue working. I'm sure that must have been a very big disappointment. There are some here who also have the SCS, some still get use out of theirs, and others, like yourself, don't use it and haven't had it taken out.
There are also some RSDers who have had spread internally.

Reading your post, it appears you've literally tried everything!
Please know that you are not alone......there are many hurting people here, the support is truly unbelievable.

We continue to strive for hope and strength.
Thank you for coming aboard, Cricket

Truly Caring
Rae