wow -that's exactly what I've said to my husband "I've lost my "me" or this is not "me". I'm the one that was learning to kayak, taught my girls to shoot hoops and play baseball, that played in pick-up volleyball games, and did everything spontaneously with my daughters to teach them to enjoy life and be a part of it....but now suffers when the car windows are open and the wind blows on my skin, or the air conditioning gives me goosebumps and triggers the all too familiar burning.
I am still "me" but it's so much harder to show the world that this bizarre bunch of symptoms is not who I am now - I'm under here still.