Oh dear! It can be such a long road!
I am not convinced, esp. with the newest FMS info,. that a diagnosis of FMS is any less incapacitating than some forms of MS. I know studies have shown both FMS and CFS are often severely incapacitating... even more so than many other conditions.
I agree with "jewels," above... I hope you are able to enjoy life.
~DejaVu