Quote:
Originally Posted by pacugirl
wow -that's exactly what I've said to my husband "I've lost my "me" or this is not "me". I'm the one that was learning to kayak, taught my girls to shoot hoops and play baseball, that played in pick-up volleyball games, and did everything spontaneously with my daughters to teach them to enjoy life and be a part of it....but now suffers when the car windows are open and the wind blows on my skin, or the air conditioning gives me goosebumps and triggers the all too familiar burning.
I am still "me" but it's so much harder to show the world that this bizarre bunch of symptoms is not who I am now - I'm under here still.
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This sounds really, really crazy but we have to stay strong with love in our hearts..Be open to eachday as it presents itself and accept that we are who we are...strong, forgiving, accepting and warriors of our disease..As I believe there is a reason why we have this and it is a positive reason, (this is where I will get an arrow in my back) but we must be proud and determined of who we are!! Although our lives have been altered for the long haul we won't and can't not waiver...as one day..it will all make sense..In the mean time, we do what we need to and smile aniouxiosly awaiting the outcome...
I am so proud of each of you, my RSD family... and even prouder to have met and know you!!!
Much Love, Kathy
