Quote:
Originally Posted by ashleyk
Does anyone have or know of hypothyroid neuropathy?
I have been on Synthroid for 38 years due to thyroiditis. Over the years, I am sure my doc used only TSH to adjust my synthroid dosage. I have since found out that TSH is not a reliable metric for someone with no thyroid. I believe free T3 and T4 levels are the only way to maintain optimal thyroid health and they should be at mid to high normal.
In Feb. my doc cut my Synthroid back by 20% because my TSH was 0.1. I became very hypothyroid symptomatic including aching feet and leg muscles. It continued to where my feet and legs burn, tingle and ache as in neuropathy. I also have RLS which developed 5 years ago. I have since found out that all these symptoms and RLS can be caused by hypothyroidism. I believe my T3 level has been low for years and maybe is the reason for my neuropathy. I have since raised my synthroid by 10% and added Cytomel, T3, but the symptoms persist. Don't get to see an endochronologist for 6 more weeks!
Does anyone have a similar experience?
John
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Hi John,
I am having the exact problem. I have been hypo-thyoid since I was 8 and I am not 48. I also have RSD from a accident to my right arm and have gone through all kinds of treatments for that with some good success. Over the last 2 years I developed a lower back problem that effects my legs and feet after rest, like driving for a distance, getting up after sleep etc. that's when the pain comes in the feet and legs but once I get going I can and do walk up to 2 -3 miles a day. The doctors have always said it was do to the back issue and I have had lower back bi-lateral epidurals with really good success. But I really don't get back pain...But the legs and feet are horrible. Anyway I have just switched to a new endro. and she is great my PCP doctor was managing my synthroid and really screwed me up, reduced my synthroid I gained like 60lbs and then had it. Got with the new endo. after the blood test she raised may synthroid to 175mcg and I have already lost 17 pounds in 2 months but I am also walking and really watching what I eat, I'm not good at things called "diets". But what really interest me is the pain you are having due to low levels in synthrod hormone. I have thought of this a 100 times because I have read research on this topic but in regards to RSD.
If you don't mind what dose of synthroid are you on? My new endo. has stated I almost have no normal thyroid functioning because I have been on synthroid for so long. Kind of what you have been told....Would appreciate any input. I am seeing my endo. in late July and will definitly discuss this with her. Thanks for the post. I feel like wow someone understands what I'm going through...
Thank you so much,
gabbycakes