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Originally Posted by elunow
I have been been diagnosed with MAMA (Multifocal Acquired Motor Axonopathy), and my doctor wants to start me on IVIg. There seems to be little information about MAMA on the web.
Is there anyone out there who has this condition?
I've got atrophy in my right palm, forearm, and triceps.
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My doc is trying to pin down my diagnosis; so far we're considering "atypical CIDP" and MMN. Despite extensive googling, I don't think I've run across MAMA. How is it different from MMN? I just had my 3rd monthly IVIg treatment; so far I only notice a lessening of fasciculations. My left thumb & index finger are no longer extendable; I feel like my left hand is turning into a claw...