Hi, Jeanie in the U.K. -

Nice to "meet" you - just spoke with my sister-in-law who lives in Worthing, East Sussex (I'm American).

Good gracious, sorry you are having so many symptoms but no answers as yet and that I don't have what you describe.

Anyway, have you been able to schedule sooner rather than later with a good neurologist and rheumatologist? Your symptoms are so vast that it might require a team of specialists docs to sort this out for you.

Please keep us posted as to what's happening.

Best wishes,

Barbara
a/k/a Sheltiemom