Bubblegum I know what you are going through. I take Loratab for the pain but now that doesnt work just keeps me up. My husband massages my feet with Icy Hot that helps takes away the cold and burning sensation for awhile. I feel your pain you are not alone. I take Gabapentin (generic Neurontin) and I find it helps a little.
This disease is so frustrating to have to describe it to someone whodoesnt have it is so frustrating because the pain varies from one to the next so it is hard to describe. I hope you find relief for your pain