I think the most important thing to do is for him to try to relax. Stress makes MG so much worse.

Well, really, the most important thing is to probably go back in to the doctor or the ER. Having trouble swallowing or breathing is the reason to go back in. Or generalized weakness. Steroids can also make someone temporarily get worse. And since he is immune suppressed, he can get sick more easily. He should make sure that cough isn't bronchitis or pneumonia!!! Especially after just being in a hospital setting.

IVIG is what he obviously needs and if he has orders, he can go in and get it done. Don't put his health on hold because of bureaucracy. IVIG does not have to wait. Why is he seeing an oncologist?

Don't sweat the social security people. Is he in the beginning process of applying? What stage is he in? They often will want to deny people social security, even if they are truly disabled, for the first two tries - until it goes before a judge. What can you do? Easy. Document everything your husband does, with writing, photos and videos. Get a good neurologists and any other doctors who will write a letter saying he is disabled. MG is a disabling disease and the hallmark of it is fatigability, meaning he can do some things at some times (like in the morning or after drugs or after resting) but not others (late in the day, drugs have worn off, has done too much). They can't videotape you 24/7 - that's illegal. But you can.

Social security disability is not based on being able to do something a couple hours a week!!! They want you to think that. It's based on NOT being able to work more than a certain percentage of a week, day in and day out for an extended period of MONTHS. A good lawyer knows that and he may need one if he gets to the "third" phase of soc. sec. application.

It sounds like he went a long time undiagnosed with celiac and it did damage. I hope he is doing lots of supplementing with vitamins. He and his immune system need pampering right now.

The sulfur smell is "probably" because he is not digesting and absorbing protein well. I think his doctor should be told of this and they may be able to reassure him. Is he gluten free now? If not, he can get worse.

Is he able to stay hydrated? Can he swallow food? If not, those are other reasons to go in.

Can I talk straight? He sounds like he is in bad shape and needs more care. And not in a few days but right now. I'm not a doctor and only a doctor can adequately evaluate his situation. Like getting a chest x-ray.

I hope you can get him healed. I, again, highly recommend higher doses of sublingual methylcobalamin a few times a day. Like 5 - 10 mg. three to four times a day. He needs B12 to heal his nerves and cells. Shots aren't going to do enough. The Jarrow brand from iherb is what I really like.

I'm sorry you are both going through this. Please understand that healing is going to take a while. And MG takes longer to get better after a breathing crisis, so he has to stay out of that southern heat and humidity, stay cool and rest as much as possible.

I hope he will get better soon. Just go in, because it's better to err on the side of caution.

Annie