Jim.
right now we don't even know how many PWP there are! Because the cases are not even reported at all. Some say there are a million of us in USA alone, some say 1.5 million; some say soon will be 8 million in USA because of Baby Boomers getting old. Even the simple question of how many are we has no answer. One doctor from China says as their population ages they predict 30 million PWP in CHina.
i believe some people on this site are working with the government or something to put together a registry for PWP. When they get up later in the day they know more than me about it