Hi Christopher and welcome to the site. You have been through a lot, I feel for you. I know the "diagnosis area" can be challenging and exhausting (mentally, spiritually and physically). This site is a wonderful place for information and support.

Do you have a good support system in place? Do you have a neuromuscular neurologist in your area?

I am sure many others will offer their thoughts but I just wanted you to know that you do not walk this road alone. We are here for you! Take care ~ Melanie