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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hi, I was curious, does you Neuro/doctor have many MG patients? I've found that an MG specialist, or a doctor with many MG patients, usually are well aware of the pains/aching of muscles in MG patients.
One thing you can do is, print out information off the internet, and then the next time you see your doctor, you can show him/her that you found others, (and an article, or two, ) who are experiencing pain.
You can say something in a non threatening kind of voice like, "hey, remember when I told you I've been getting pain, well, it was bothering me so much, that I looked it up to see if others with MG ever have it, and now I don't feel like it's just me, cause look what I found".....etc.... Something along those lines.
Most doctors just want to help you, and will accept the information.
This is one area, I have to say, that I was very relieved that my doctor knows. He has many MG patients, so that really helps.
Annie, the "ants crawling underneath, or even ontop of your legs", can be nerve damage. I have bi-lateral nerve damange down my legs, and that's exactly how it feels on one leg. I also have it where I once had shingles. There isn't anything that can really be done for it, except maybe botox, but I wouldn't recommend it. Especially during summer months, I'm constantly looking down at my leg making sure nothing is there. It's a horrible feeling.
best of wishes
Lizzie
Last edited by Maxwell'sMom; 07-13-2010 at 02:41 PM.
Reason: you know, miss spellings, missing words....etc..
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