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Old 07-14-2010, 08:51 AM
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Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Heart Jami

You could never 'bug' us enough no matter HOW hard you try!!
We are just one big happy family here in our own li'l world
And YES, like you, I had searched the cyber world endlessly... It was easy to find web sites with info on the SCS but i could NOT find any legitimate ones with discussion from the patient's point of view!! The few I did find had a lot of negativity and/or the members seemed to 'bicker' amongst themselves....but then when I happened upon NT here, I was instantly drawn in. At that time, this SCS/Pain Pump forum had not been created yet, so i frequented the "Chronic Pain", Peripheral Neuropathy, and RSD sections. (by the way, if you still have that 'burning' neuropathy pain, I would highly recommend hopping over there to the PN forum. It is very active and FULL of endless knowledge. I jump back and forth between this forum and PN, and RSD) Anyway, I soon realized that people were coming to this forum by the bucketloads asking about the SCS. It became evident that having a seperate forum specific to this discussion would be very beneficial.

We're glad you've happened upon us and hope you stick around to share your experience. We continue to learn and grow on a daily basis and the neatest thing about this is that it's 'real people' talk. Not business propaganda, no sales pitches.....just real people who are fighting to get their lives back, just like you....and from what you've shared, you've got aLOT to fight for! So, thank you for sharing, and you'll be amazed at the comradere and true loving support you'll get here.
We help each other as we go thru the gammet of emotions that chronic pain conditions bring.

Isn't it 'amazing' some of the things we are told when we reach out for medical help with a pain condition ? 'stress'......'menopause'.....'it's all in your head'....... THEN, once it does become clear that there is a 'real' situation going on, it can be difficult to find a Dr willing to make the commitment for the long-haul, without being 'passed off' to the 'next' guy.
Honestly, (and with all due respect to the medical personnel) I've learned MORE from this forum than I did from ALL the Dr's involved in my 5yr battle.

You certainly have seen your share of struggles, but I can sense you are determined and ready to get your life back! Chronic pain is such a rip-off.

I'm sure you've probably read thru the threads and topics involved in the course of getting this procedure. There's a good thread somewhere down the list here regarding the pyche eval. It's all standard procedure and it appears you've got a good grasp on what's ahead.
And yes, there ARE stories here of struggles and failed attempts, but there is a wide range of folks here testifying that the SCS or Pain Pump has helped tremendously. There are no two stories alike.

From what I've seen, especially here lately, is that the hardest part of the process is the WAITING. Once the trial procedure proved successful, it is VERY hard to have to wait for the permanent, especially after having had a taste of what a painfree life is like!

Welcome aboard, my friend
Rae
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"Thanks for this!" says:
kidshilleen (04-07-2013), Mark56 (07-14-2010)