It certainly sounds as if MG is a strong possibility. Unfortunately, it is a diagnosis that is arrived at by ruling out just about everything else. The fact that you are able to take such high doses of Mestinon would suggest that you are looking at an MG diagnosis.

Many doctors will tell you, "You really DON'T want to have this" (as if they think that we really WANT to be sick), but they don't take into account that KNOWING what we have is half the battle. Just knowing that it ISN'T all in our heads - that we have a name for what has been causing all of our symptoms - means having a definitive "jumping-off" point from which all of our future medical decisions can be made. That data point is HUGE. I'm not sure that doctors "get" this, unless they have been in a similar position themselves.

This is a great group, with lots of information and really nice folks. I hope that you get some answers really soon!