I also have RSD from shoulder surgery - I injured myself in 11/2006 and had rotator cuff repair in 5/07 and 4/08. I was diagnosed after the 2nd surgery in 6/08. Mine spread first to my neck and head, and then later to my right leg. Numerous blocks and lidocaine infusions didn't do much.
Ketamine infusions have helped me quite a bit, I started them on April 19th - and I am finally back to work. I fly from RI to NJ to get mine, since there is nowhere local that will take care of me. I know there is a doctor in Rutland, VT that has started to offer them - is that close to you? I can give you more info regarding him if you would like, I have a list from Jim Broatch of the RSDSA of ketamine providers in the US.
I am also a victim of WC - I'm a CPA and tore my rotator cuff carrying a heavy workbag. It was pretty difficult to obtain authorization for the infusions. As a matter of fact, my doctor has still not been paid by the Hartford (they suck big time....). But he took care of me Monday and Tuesday of this week anyway with my 21st and 22nd infusion before letting me know my bill was still outstanding and asking me to hand it to my attorney. It's hard to find doctors as nice as that - I was just incrediby lucky to stumble upon a guy that truly cares about his patients (Dr. Philip Getson, Marlton, NJ) and is willing to let the money trail follow.
Good luck to you, XOXOX Sandy
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Originally Posted by pacugirl
I'm lucky I was sent to a that doc dxd crps so quickly, since I don't have noticeable skin changes (yet?). Sometimes I wonder if they messed up my shoulder surgery (open rotator cuff repair along with resecting my shoulder bone, shaving down my collar bone and fixing other muscle ligament problems from years of nursing activities that took their toll -but I don't dare have them open it up to check. "Let sleeping dogs lie" at this point.
I'm Northeastern NY -between the Adirondack Mtns, Montreal and Lake Champlain. Burlington Vt is across the Lake from me (can see from our road).
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