Angela, where did you get the waterless shampoo? I didn't know there was such a thing. That will definitely be put on my "purchase list". How in the WORLD did you tear the implant loose just from falling????
I am just cringing at the thoughts of that! Bless your heart! Just the fact that you are letting them go in a 3rd time for the battery must mean you have had SOME kind of success with it, right? How much relief would you say you have gotten?
Rae, You nailed it on the head when you said its passed on as its all in our HEAD!!! I was in a relationship for 13 years. He finally couldn't take my pain issues and mood swings nor could he understand them. I heard a few times towards the end that it was all in my head! I can't say I blame him in a way because if someone has never been through it, they truly don't understand. But in another way, I know I would have stuck by him if it were reversed. If this works, I will really kick myself for not doing it 2 years ago because things wouldn't be the way they have turned out. Thanks for the suggestions of the other forums. It took my brain almost an hour to realize if I went to the main board, I would find those topics lol I will definitely stick around to chronicle my progress. I don't have a way with words like you and Mark do but if one person can take something away from what I go through, it will be worth it to try and help.
Mark, I have read your posts and you are definitely the poster child for SCS!! Yes, that is a compliment too lol I have been talking with a rep from Boston Scientific for a while now. She has yet to sell me on it. She told me that isn't her job. Her job is to answer any questions and let ME make the decision on what is best for me. She is an RN. I think that is why I like her so much. Now I am going to have to threaten her with 100 lashes of a wet noodle if she lets them put any other SCS in me but hers lol Seriously, she has been VERY patient and answered numerous questions for me. She calls me twice a week to see how I am doing. How do you like the BS unit? Is it easy to use??
My pain doc has given me the Medtronics package several times. I was finally honest with him in May and told him I do NOT want the Medtronics after all my research. Yes, I know there are success stories with Medtronics. I said I am interested in the BS implant, does he do those? He asked me why and I was very honest. I said bottom line, I want the wireless remote. I said if I am going to lead an active life again, I don't want to be tied down to a bunch of equipment. I told him my other reasons but that was THE main reason. He grinned and said, as usual, I can count on you to do your research. He then admitted his favorite rep to work with was the BS rep but just passes out the first package he grabs when discussing the SCS with patients. It just so happens with me, its been the Medtronics package. I was also given a list of patient advocates for the SCS. Naturally, they give the positive patients to make one feel better but I already knew there were the negative patients. We have all read those stories online. Are we allowed to post links to blogs? There was a blog I came across a few months ago where a gal chronicled her prodecures and she has the Medtronics SCS. Like Mark, she is an attorney and her posts are very fun to read.
Mark, thinking about the permanent implant and those incisions does turn my stomach in knots. You have given me a little comfort. I thought my laminectomy/fusion recovery was a breeze. I had been in so much pain prior to that surgery that to wake up and realize that pain was gone had me ready to dance a jig. I ended up in the hospital for 5 days (not allowed to get up for 3 days because of complications) but even through that, it was a breeze recovery. Just a slow recovery.
So here is my warped humor regarding this SCS.......I joke with my friends and tell them I am going to have an alien baby (the implant). I said it is going to go in my butt so when I meet a good looking guy, I can ask him if he wants to burp the baby. I tell my kids that I am going to go on the Maury Show. ET..........you ARE the baby daddy!!!
We will have to name this alien baby soon
