I started IVIG again after only two and a half weeks out of the hospital because I need it so bad and will be doing another five days in two more weeks. Today is going to be day three and already my breathing has come down from 26 respiration/minute at rest to 12 between doses of mestinon and my legs are very strong again!

My question is they infused it to a rate of 120 per hour in the hospital and now they were going to go to 360!! I asked them to leave it at 120 as the highest. Should I try a higher rate? I seem to be doing well but I don't want any drama. What is the rate you guys use?

Thanks, debra