Quote:
Originally Posted by Sarah Mae
I am not aiming this at you directly, but I get frustrated when I hear people saying things like this. "Lyrica will help" "Neurontin will help" "Vitamins will help" I've been on all of those... I've tried all three of those.. I've tried Topamax. I've tried so many things and have not found any relief--in fact, the PN has gotten much much worse over time, even though my vitamin levels are all at normal levels now. Lyrica and Neurontin are not the answers for everybody--they do not work for everyone. They aren't magical cures... what works for one will not work for another... they sure haven't worked for me. =(
Again... this isn't meant to be aimed directly at you.. but I see a LOT of people saying that one specific medicine works best... when in reality, that's not true--it depends on the individual.
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Well Sarah people here can only relay their own experiences or things they have learned along the way. If something doesn fit YOU then its Up to YOU to figure out what does. As far as the vitamin thing ive seen it explained several times to you that for some of the vitamins what is considered normal by standards in the US is not what is considered normal in other places besides information which has come to light showing damage was being done to nerves at the lower end of what was considered normal reading for some vitamins. There is no miracle cure. If you are lucky and you do everything you can you MIGHT get better. there are no guarantess and you need to do some of the research work yourself to better understand what is being talked about.
I know one person who died from complications of the surgery and i know of a few others who have had it and none of them were ever informed of the need to supplement their diet because of the reduced absorption of nutrients due to the surgery. this is a great failing in my opinion. There are no miracle cures for PN and no treatments that dont have tradeoffs of one kind or another. The same goes for weight loss methods.