Hi, I am new to the forum. I have a 15 year-old daughter who I think might have RSD. The neurologist said that it is either a sensory neuropathy, which would be very rare for a child, or RSD.

There are a couple of things that seem odd to me though. Here is her story, in a nutshell:

November- she began having headaches.

January- headaches turned to migraines and continued to get worse and last for longer periods of time.

Mid-April- she developed a sudden pain in her left shin. Within 45 minutes she was screaming in pain and she could not walk. I took her to the ER, they said that it was probably related to the migraine. Her neuro at the time said that was impossible. He sent her to a rheumatologist. The rheumatologist told us that it was "just something teenagers get." and gave her Tramadol. That did no good.

First week in June-- pain spread to left arm, right arm, and right leg. She could barely move. Went to a new Pediatric Neuro, he put her on Neurontin and increaded Amitriptyline. She was then on 40 mg. Amitriptyline once a day and 300 mg. of Neurontin 3 times a day. about a week later, he increased the Neurontin to 600 mg. 3 times a day. The pain was not gone, but it was bearable, and she could walk much better. Night time was still worse than day time.

A few days ago -- the pain increased to where it was before the Neurontin was started. The neuro increased her Amitriptyline to 50 mg. per day. She is still in a lot of pain.

She did not have an injury of any kind that started this. I have read that there is not an identifiable inciting incident in about 5% of RSD patients.

Does all of this sound right?

Could the migraines have anything to do with RSD?

We have ruled out all possible underlying disease.

What do you think?