Heading to Omaha tomorrow for appt with movement disorder neuro again hope he has some ideas since he was one who was referring me to Mayo. Not sure what will happen but hopefully he has some idea as the docs here sure dont.

UPDATE
didnt make it to Omaha... got sick during the night and was vomitting so stayed home no idea when I will be getting in to see hm now. Appt desk said that she was up to November and hadnt found an opening... so she would have the nurse call but no one hass