Originally Posted by MysteryPainMom

Thank you all for your responses. This is all great information for me.

She has had an MRI/MRA cranial/cervical/thoracic --normal
CT- head -- normal
Blood work for autoimmune disorders -- normal.
Blood work showed some inflamation as well as high liver enzyme. We are having the bloodwork repeated, just to make sure that nothing shows up this time.
Bone scan -- normal

EMG -- unusual abnormal findings--neurologists don't know what to make of it. It does not show a pattern of demyelination or axonal damage. It does show that the plantar (bottom of foot) nerves are non-responsive.

We went to the PCP today. We are planning on going to U of M. He is going to find out what they have there. It will probably take several months to get in there.

I just want to make sure that I get the right doctor. I told the PCP that I want to make sure that if we wait 6 months to get in somehwere then we need to make sure that we are going to someone who knows more than the doctors that we have seen before.

Thanks for all your input. I will continue to search and read the great information here.

Tracy