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Old 07-17-2010, 11:15 AM
tnalawson tnalawson is offline
Junior Member
 
Join Date: Dec 2009
Posts: 14
10 yr Member
tnalawson tnalawson is offline
Junior Member
 
Join Date: Dec 2009
Posts: 14
10 yr Member
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Please let me know how it goes my husband has Generalized Myasthenia with one crisis and is in a bad spell now however he normally spends 5days a week in bed and only maybe 2 active. He has MG, Autonomic Neuropathy Small Fiber, Peripheral Neuropathy, Spinal Stenosis and Spondylosis, Fibro, Hypertension, Edema, Migraines, and multiple others include testerone and vitamin deficiencies.

The script says 400 mg for 5 day consec. for 6 months each month. Well the infusion doc isnt familiar with hubbys MG or Auto Neuropathy and said he would try to infuse faster, he normal does chemo and only IVIG for patients needing a light dosage between chemo. He said he is going to try to push next months dosage in, well in one day..400 mg in one day??
Not what his doctor said, but we are in GA and his Neuro is in Cleveland
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