Quote:
Originally Posted by kathy d
Hi Wendy,
It sounds like you are having such a hard time right now. I feel for you. I was kind of in the same position five years ago and could not walk five feet to the bathroom from my bed, could not wash my own dishes, or make my bed. I was useless and felt terrible and exhausted with everything I did. But, I had a physical therapist come to my home three times a week and he got me from doing exercises in bed and later up and doing leg lifts on my walker...which I could barely do and would cry afterwards from physical pain and from emotional pain of not being able to do a thing. What I started to do was pray alot and try to do a little bit of something new each week (or sometimes month). THen, I would feel like I accomplished something. It took a long time and five years later I am starting to walk with only one cane now and I can do many more things around the house. I judge my accomplishments on a yearly basis instead of a weekly basis and go from there. Maybe some in-home PT and even done in bed so you don't exhaust yourself would help you out. I even used a book specifically made for exercising in your bed and it really helped. Good luck and I pray you will improve with each day.
Take care,
kathy d
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Hi Kathy d,
You said that you were in the same kind of situation as me about 5 years ago. Did they ever tell you what this exhaustion was being caused by? Right now they are telling me it is do to the RSD, I do have total body with internal. I have PT twice a week at the hosp. but even just going there tires me ou before I even get started. I have had RSD since 1986 and been thru and seen everything, so I thought. I had all this new stuff start about 2 years ago, out of nowhere.I all of a sudden was exhausted, I have erosive esophogitius and erosive gastritius that brings my pain to a new level. 2 years ago I was only using a cane, and now a walker and the Dr. wants me to go to a wheelchair because I fall all the time. My B/P is usually around 190/98 and I'm on 4 pressure pills among all the other meds. No Dr. knows what to do with me, I guess medicate me, to try to get the B/P down. Dr. Schwartzman told me I was stage 4 and was to be only palliative care. So I guess I get to just keep chugging along until they find an answer to all of these crazy new problems.
Thanks for your input,
Wendy