Do you live in MI? For the first 2 years of this I was in MI so have seen a lot of neurologist,pain doc, rheumatologist. I also went to Cleveland Clinic pain center and saw 2 pain docs there. There is a teen who ran a support group who is around your daughters age you may want to look into that it is Ann Arbor. She has seen so many doctors I think went to U of M though I know she did a lot of her treatment at Cleveland. If you want you can PM me. I hope you get into a doctor soon and your daughter gets relief.