Sorry you're suffering so, CG.
My first neuro decided I had migraines and gave me meds for that...which gave me migraines and made me feel so horrible I wanted to hang it up...

It took me 3 years and another neuro, with some severe spasms before I got a dx. That neuro passed me off to his NP, who poo-pooed my sxs and didn't call back for at least a week when I'd call with problems.
Someone here recommended my current neuro-I finally got one that listens and takes me seriously.
I hope you take the others' suggestions-esp about the eye dr.
Come on here and vent away-many of us have been through years of what you're experiencing and understand how frustrating it is...