Originally Posted by tchr012

Hi, I am new to this subforum, but I started posting an introduction in the new members forum last week. I have had my Neurostimulator implant since August 08. I was doing really good with it until my leads moved and I had to end up having a revision done April of 09. This helped me again and I was doing great until I had a very bad fall in September 09. Since then things have not felt right and my stim stopped covering my pain in my back and right side even though my left leg was okay. My pain dr tried nerve blocks and injections and it did not help and now its to bad that my stim rep cannot even reprogram me! I just had him try it again today and everytime he tried to do it I ended up with more pain and pressure So, after that disappointing meeting he told me that there was nothing else he can do right now because they have to figure out why my right leg is not only in pain over the stim but also goes numb pretty often (which causes my falling). He also said that the only options after that would be for them to move the lead which means I would have to continue using walker or wheelchair with my stim or have them do a surgery with paddle leads and that would be way more involved since they take out a piece of bone! But the pain dr told me that no one will do anything until I see the neurologist which is august 9 to see what they say and see what they want to do. I am just so frustrated right now because I am also trying to go to school full time and I am so tired of being in pain and also tired of the falling or the losing feeling in my leg! I used to love my stim because it helped have a life that I wanted where I was able to walk and exercise and do everything and it was great because I have lost so much since the accident that made me have to get the stim in the first place. I am just really upset and feeling down and looking for others to talk to! Thanks for listening

Tara