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Magnate
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Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
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Magnate
Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
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I've been diagnosed with MS for a little over 20 years now. I tried Avonex for one year, but then got to where the needle began to look like a railroad spike and I just couldn't do it anymore.
I was on Copaxone for five years, but starting to get worse.
I was on Betaseron for three years, and began going downhill faster and faster.
I am now on Tysabri, and have just had my 11th infusion. My last MRI came back with no changes. I get mild flares, especially with the heat we've been having, but my general overall MS symptoms have remained the same. I've stopped the downhill slide, have had no side effects, and I'm happy to go in every four weeks for the infusions.
If Tysabri stops working for me, I will discontinue it.
I'm also thinking about trying to find a new neurologist. The neuro who started me on Tysabri moved out of town in January. I've only seen this new one twice, and I'm his only patient taking Tysabri--which I thought was odd. I asked him why, and he mumbled something which I cannot remember. I hate to change neurologists, especially this quickly--and his office is five minutes from my house--but I most likely will be doing just that.
I think Tysabri is providing the drug for me. Sorry, but my brain has turned to mush and I have a hard time remembering things!   
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Mair
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