Hello and Welcome!

You sound exactly like me! I needed Mestinon - but didn't want to medicate or become dependent (or maybe just didn't want to admit how much I needed it...I don't know!)

Anyway, I am quite functional for someone with MG - even without the Mestinon. But after a year and some of denial - - I have finally given in to the fact that I can do whatever I do better (and with less 'willing myself to get it done') with the Mestinon than without. I have now increased to 120 mg on quiet days and 180+ on physically active days.

Unfortunately, if I string too many physically active days together, I really need to up the Mestinon - - until by the 3rd or 4th day - I just have to give in and have an inactive day (which I hate!)

Even with the Mestinon increase I have had some deterioration - my eyes and swallowing are not as good (but not bad yet either). So I'm hoping that taking the Mestinon will allow my muscles to last longer (but I have no way of knowing that this is even factually true!)

There are certain foods and beverages that help or hurt MG - but the 'helpers' are not as effective as Mestinon. (Like caffine helps - alcohol hurts). Sleep (as in really restful REM sleep) is imperative. Not getting overheated (whether physical temprature or exercise/exertion) also very important.

Hope this helps - I applaud your wanting to investigate options. One thing my neuro recommended was daily sublingual B12 (for nerve health). That seems to be fairly consistent with everyone one here.

Sue