Dear Poster,
I am sorry to hear of your struggle.
I would definitely see a neurologist. Don't just go to any doc, make sure and find a really good one. Also before you go write everything down in outline form so that you can either use it to prompt you when talking to him or he can just read it. Also make sure that you have your CT scan sent over (not the report but the actual images).

So far it isn't helping, but that was just a week ago and I have been very irregular since then, so I shall see next week.

Anyways, if you had fluid in your brain you really need that checked out.
Also, a neurologist can give you a good idea of how long and how best to deal with the wait.
The not knowing is what really killed me. I saw 8 docs in all had 2 CTs soon to be 2 MRIs. I have tried all sorts of different diets and over the counter meds and exercise regimens. The only one that has brought me a little peace is the neurologist.

See a neurologist do the tests he says and it will give you a lot of peace. At least you will know rather than spend a year and a half waiting in pain and in the unknown.

Good luck!
Mary