..." how many of you know your H & Y score? How about your UPDRS score?
Debi

I have no idea what you are talking about. Diagnosed in 2004; symptoms since long before that; participated in several clinical trials; many cognitive tests; experimental MRI where I play a sort of video game while they take "pictures" of my brain; top level neuro 4 times a year; constant PD noise-maker on the internet, pretending I know what I am talking about,...

... and I have no idea what those initials stand for, and have never seen any scores about my condition.
Somebody is keeping score? Am I winning? Is there a shoot-out to break a tied game? Is there overtime?

But it is my own doing. I never asked any questions about the disease, the drugs, or anything. I prefer to bask in the pleasant light of my ignorance. It is not really denial; it's more like, I can think about other people having Parkinson's but for my own condition, I am not eager to know the details. It's a story where I don't like the ending or the role the producer gave me so I just try to pretend I forgot my lines, hoping to get kicked out of the play and they will tell me it was all a mistake - I am supposed to be in the audience applauding, not up there in the play.
But slowly the illusion becomes harder to maintain. Had some fun with it though. No regrets.
So what do those initials stand for? Is there a home test kit, like for pregnancy? Could we make money if we made it a board game?