im not posting this here to take anything away from neuro talk , i posted it for the good PatientsLikeMe will do to help people with disease's, there illness or health care.
just like ben said,
"Imagine knowing every medication, supplement, or device used to treat your disease. Imagine knowing what treatments work for people just like you -- and having the ability to easily connect with those people. That's what makes PatientsLikeMe different. Patients share their treatments and outcomes not just to help themselves, but to help others," says President and co-Founder Benjamin Heywood.

so check it out, in just under one year 800+people with als joined on along with there caregivers 330+.
PatientsLikeMe is the start of the new wave for people to help themselves and help others at the same time.