Thanks Debi,

For more than just asking, but also being a part of something that recognises that there are inadequacies in the way information about PD is acquired. The patient IS the key, and unless asked in the right way the questions will get fuzzy answers that are open to subjective interpretation, or misinterpretation.

The scales are weird anyway, you could be stage 4 when you get up in the morning, and practically normal when everything is working right. Even the patient is not really aware of what stage they are under the medication.

You are on the right track, this is the way that research design needs to be rethought.

Best Wishes
Lindy