Thanks to everyone who has replied. My son is not on cellcept or prednisone so I don't know what to do. It is getting really awful to deal with. His other symptoms are getting worse too though so maybe there is some connection. He is having surgery on Monday for his eye turning in to try to relieve some of the pulling of the muscle that he feels all the time which gives him a terrible headache and nausea. Also, the other day for several days off and on his right pupil was bigger than the other. We took him to the ER but the tests were normal for the brain so no serious issues with that, I hope. It has not done it for a day or so though so hopefully it was some weird thing.