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Old 07-24-2010, 12:49 PM
MG mom MG mom is offline
Junior Member
 
Join Date: Jun 2010
Posts: 8
10 yr Member
MG mom MG mom is offline
Junior Member
 
Join Date: Jun 2010
Posts: 8
10 yr Member
Confused MG and stomach/bladder/rectal muscle weak

My daughter was diagnosed with MG at age 8 (she is 18) She was doing pretty good for a while and then started having major problems with her stomach. She is always so constipated and then has bile and acid coming up into her throat and vomits about 1-2 times per week at night or in the morning, straight bile. She has been having tests done at Shands and they are relating her stomach problems to MG but the neurologist says it is not MG. Also, she has bladder leakage at times and according to the last test done at Shands, she could not expel things from her rectum, so her rectal muscles are weak. Does anyone have these problems. She is only on Mestinon, not cellcept or prednisone. She has also had to have her gall bladder removed and her appendix as her stomach and intestines just move so slowly. Her brother who has MG also had his gallbladder out as well when he was young too. Something is definitely wrong but if it is not MG then what is wrong with the stomach thing. They both were tested for Gluten intolerance, Krohns and other things but all negative. My son has stomach issues but not as bad as his sister. Don't know what to do at this point. Shands wants to remove some of her colon and she would have to wear a bag. NOT GOING TO HAPPEN TO A BEAUTIFUL 18 YEAR OLD. When she did her colonoscopy prep, she drank a bottle of magnesium citrate, didn't go, then drank almost the whole 4 liters of that other stuff and still didn't go AT ALL. Called the doctor frantic because she was about to explode and we had to do an enema. She still didn't really go all that much and did another enema again before we left for the test. Then they complained that she didn't do her prep because she was not really cleaned out STILL. HELP.
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