Senior Member
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
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Senior Member
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
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I was in your shoes, writing about the same kind of a post on this board, not too long ago. And many of the same people who replied to you also replied to me, with the same advice...
All I can say to you is that over time you somehow learn to cope. Ada is right about the doctor part - keep searching until you find one who supports you and that you trust. Board certified Pain Management docs and Anethesiologists are good, but it depends on where you live. The best doc in the country for RSD is reputed to be Dr. Schwartzman out of Drexel Univ in Philly, but the wait is about 2 years to get in to see him. He is a neurologist. If you post where you are from on this website, you may get some recommendations from others who live in your area for docs.
A GREAT source of info is the RSDSA. To join go to RSDSA.org. They also have an archive of medical articles regarding treatments for RSD - lots of good stuff.
I would also advise you to keep moving, try to stay involved in a PT program if your insurance will allow it. The more mobile you are the better off you will be in the long run. Also, many of us see a psychologist to deal with the depression and losses that come with a chronic disease. There's so much for us to deal with.
Don't hesitate to come back on and ask more questions. That is what we are all here for. My friends here on this board have helped me out so much. Its what we do!!
XOXOX Sandy
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