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Old 07-27-2010, 06:25 AM
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
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glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default Personally--

--I think mumof3's husband has gotten a raw deal from his GP. Such as process as she describes is just not ethical, and has had delterious consequences.

Beyond reporting the GP to the appropriate medical board, I would start over again with a specialist, if possible--it's certainly possible that his symptoms are casued by spinal problems, not necesarily more systemic neuropathy-causing conditions--but that needs to be determined. Some forms of nerve damage are treatable or arrestable, and it's worth trying to find out if he's got something that can be mollified, especially as his symptoms right now seem limited. And, he may have a circulatory problem primarily--there's no way to know without some further testing.

Once again--it's time to trot out the Liza Jane spreadhseets:

www.lizjane.org


--excellent for suggesting tests and tracking results over time.

And, mumof3, if you've gotten his medical records, make sure you've got them all--test results as well, if any, and all notes/comments, and bring a copy to a neuromuscular or neuropathy specialist. There are a number of neuropathy centers around the US that do comprehensive testing/diagnosis--Massachusetts General in Boston, Cornell-Weill in NYC, Jacksonville (FL) Shands, Jakc Miller in Chicago, University of California/San Francisco, Johns Hopkins in Baltimore--that you might want to consider contacting. At the very least, you'd want him evaluated in a teaching hospital/tertiary center with an extensive neurology department.
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