Hi Wondergirl,

its me again. I haven't been on for a while so I am not familiar with your history but I am guessing you are in the disgnosis hell I am in. I am without a diagnosis for the last three years and have been dropped by my neurologists. I am allowed to continue taking mestinon as it "makes me feel better".

I think that the Tensilon test is the way to go- I doubt that they will believe your mestinon results as neurologists like to have clinical data, and you may be subconsciously making your symptoms go away after you have taken the mestinon. You may think thats explanation is nuts but believe me Ive had it thrown at me.

Stay strong and continue to believe in yourself.

Rach