Quote:
Originally Posted by calewark
Hi Lily,
I so hope that you read this post tonight. I understand from Tina that you are going thru some tough times today. I want to share with you about having the leads taken out. First of all, there is not pain when they take them out. I did not feel anything. I wanted those leads out really bad. They were all tangled in my hair, it would hurt when the generator would move as it was so heavy, all the cords on my chest where not sticking and falling off. I was a mess. I just could not wait to get them out. It was like a huge thing in my mind that it would help to get them out. It was not 30 seconds when I told the Doc....oh my god......I have to have them back in. I realized how much they really did help and started my despair of waiting for the permanent. The pain was bad. It was like the nerves were so happy to have the wires gone and they could start their streaming. The pain did settle down to the normal pain that led me to wanting the stimulator. You have to hang in there. Do not panic. It does work and you had some times that showed you that. I hope you are not going to the er. That will show on your record and could be a problem as the insurance co may think that it was not working. Pray for the pain to go away. I understand that tomorrow is the day that the leads were to come out anyway. I know you have a problem with a ride. Take that time and take a walk, read something...just do something to pass the time before you can get back on the road. Maybe she could drop you off at a shopping center were you could get a cold drink and keep your mind busy which helps you not notice the pain as much. If you have an attack, just go outside someplace away from people and then just calm down. You can do it. Be strong just for a little longer. You will be okay. I so hope you can read this tonight and if you need to talk please call me. I am at 303-722-1307. I live in Denver so closer to your time and I will be up late tonight so please call if you would like some encouragement. I been through it all and still am. I would love to talk you through it. If you do not call please let me know how you are. Hang in there sister.
Love
Cheryl
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Hi Cheryl,
Thank you so much for this post - you are right - they came out today, and I didn't even feel it. So strange! But the nerves are definitely responding now that I am home, and I am keeping really quiet.
My husband finally called in to work and took the morning off to take me. I feel bad about that - people depend on him at his job.
I think that my NS is going to bat for me for getting it approved. It will work to his advantage too if I go through with it.
I am hoping that you are feeling better, I gave Tina a little tip to give you that may be helpful. It frustrates me to hear that you will be two days short.
But keep your chin up, dear Cheryl, and you will be there sooner than you think. Mine will happen sometime late September / early October. So long! Oh well - he's in demand so often becuase he is great at what he does.
Hugs to you, and lay low, ok? Be gentle to yourself and ask for all the help you can (be demanding if you have to
)
Lily