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Junior Member
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Join Date: May 2010
Location: Israel - and my head
Posts: 53
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Junior Member
Join Date: May 2010
Location: Israel - and my head
Posts: 53
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Some more information
This story was shown in Canada Nov 2009 on a News Mag show called 'W5'
http://watch.ctv.ca/news/w5/the-libe...nt/#clip237746
They've been doing a lot of updates and before I moved from Canada -I tried to get my Nero to send me as a test case. There was a test team setup in Buffalo with Dr Zamboni (the doctor who discovered this) My Nero told me I could only get the testing done to see if I have the blocked veins - but not the procedure. Darn!
Sorry Eddie I didn't watch the utube clips so if I am repeating what was on it I apologize.
I have been following this closely for a year - because it had just 'exploded' on the internet and The MS Society of Canada was bombarded with questions and allegations that donated money was not being spent on new types of therapies like 'The Liberation Treatment'. What were they doing with research money if not researching this
The discussions and media coverage that ensued was very exciting. Folks with SPMS were demanding to go through the procedure no matter the risks and the Government should cover it. I would agree at this point
My neurologist in Canada was being pragmatic.
I was sure he was bombarded with calls for appointments. He asked me to wait because the procedure is delicate and can only be done by experts. They were still learning and trying to understand the ramifications of the procedure.
Interesting enough when I met my new neurologist in Israel he said the same thing - he was concerned it was a lot of hype there wasn't enough data to support a theory that this treatment is 100% safe and works
http://liberation-treatment.com/
In Buffalo the test conclusion.
http://liberation-treatment.com/resu...-trial-buffalo
In the Buffalo test: quote
'55% of MS patients who participated in the initial study were found to have the venous abnormality that Dr Zamboni termed CCSVI, with an additional 10% who were borderline. This compares to a near 26% of patients without MS who were also found to have the condition' end of quote
Hope I haven`t thrown this thread into a loop.
I`m really pleased this was brought to the forum and if anyone would like more information that I gather from Canada -let me know and I`ll be happy to post it here
__________________
DX:June 2007
Plasmapheresis:2007
Cyclophosphamide :07/08
Rebif 44 :2008 -09
Copaxone: 2009 ongoing
atypical RRMS
NEVER assume!
I may not look sick but you should see my brain!
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“The thing that is really hard, and really amazing, is giving up on being perfect and beginning the work of becoming yourself.”
Anna Quindlen(American Author, Journalist)
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