Hi everyone,

Thank you all for the support - I really appreciate it !

I've had an appointment today with my Neurologist and he has diagnosed me with a severe cause of Reflex Syncope. It is caused by the autonomic nerves and a severe drop in blood pressure and heart rate which causes me to faint and have seizures similar to Epilepsy. It is believed to be caused in my cause by the pain so we need to try and get that under control for it to get at least somewhat better. The problem is because of my back injury, I can't have the Baclofen pump which could help reduce the pain!

It's really scary and I have been told that most people have it from puberty until their 20s however because of my RSD, I could have it forever until the pain goes away.

I've collapsed about 20 times today - the worst my Neurologist has seen on average is 15 times daily.

I'm having a back MRI soon so i'm hoping that once we know the results of that we will be able to tell what is wrong and decide whether we can go ahead with the pump.

Thanks again for all your support and i'll keep you updated.

Alison