Honey,

You just tell that doctor that it is YOUR body, and YOUR health, and that you want a second opinion. There isn't a doctor on the face of the planet who knows everything there is to know about ANY given disease. And frankly, some of the ones who have a reputation for being "THE" doctor that everyone goes to see can also, in many cases, be the ones who are firmly convinced that they know everything there is to know about their particular specialty.

It. Just. Ain't. So.

If you think that this is what you are looking at, then I would urge you to seek at least one other opinion. If the doctor that you are seeing now has a problem with that, then just tell him that whenever a car is in an accident, most insurance companies want to get AT LEAST 3 estimates before having any work done.

Your health is MUCH more important than any car.

MG is one of those diseases that manifests itself differently in each person who has it. What works for one patient may not work for another one. The presentation of the disease is as varied as the people that it affects. For a doctor to say that just because he/she hasn't ever seen it before doesn't necessarily mean that you don't have it.

For all your doctor may know, you might be his/her FIRST patient in that practice who has MG with ONLY the symptoms/test results that you have. A doctor who is humble enough to realize that he/she doesn't have all of the answers is a great doctor, indeed. You want to find a doctor who is open to ALL possibilities.

If nothing else, I would tell that particular doctor that the Mestinon is working for you, so if it's all the same, you would just like to continue taking it, diagnosis or no diagnosis. If your symptoms get worse, you can always go back and have more tests run in the future.

However, if it were me, I would definitely get that second opinion.....