Quote:
Originally Posted by mrkmyword
This forum goes on and on about how great it is with supporting and reaching out to help each other
Well like other boards I've 'tried' joining, all of them including this group is a clique!
Yes I know many of you have been on the board for years and years. That's who many of you only respond to - each other.
Also, since the majority of you are American it seems you discriminate. Yes Yes I know there are a few people from Australia (only one I can think of) maybe one from S Africa. But most of you behave like a 6th grade school yard. The popular kids and the unpopular.
I live in a different time zone 7 hours ahead.
I am quite aware that chatting live with someone is near to impossible. But a nudge, an acknowledgment, more than a 'thanks' would be nice.
The only time I get a real response is if I PM someone directly - to those folks thanks you've been great.
But what is the point of posting and hoping to get a response 'ANY RESPONSE' but only get 3 responses to 10 posts you put up?
Isn't it bad enough we struggle with our own health and we come here hoping for indiscriminate help, we have to wait and hope someone greets you, responds to your post or simply reaches out.
I know this sounds like I'm whining - I'd rather say something now then disappear and not share my feelings on this 'support' board.
Maybe its summer, maybe the board needs to revamp their style and inclusion clause, maybe some are too sensitive to be here.
Well, it's been fun at times, but mostly lonely for me.
I'm gonna take a break and regroup.
Thanks
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NeuroTalk
is a wonderful site and is a source of great support to a great number of people.
Our MS community is quite large....and has many members who have been here for years. We were all new at one point in time.
Those of us with MS know what it's like to have only enough energy to read the posts and/or click on the "thanks" button just to let the author know their post was read. Sometimes we just don't have the energy to type a reply. Or it's a bad cog fog day and we can't formulate a sentence much less an entire post.
I've taken a look at all the threads you've started and there are many responses. It's unrealistic to expect a huge number of responses to every post you make. Heck, I've started threads that have gotten no responses. That's just the way it is some days. Everyone has stuff going on in their personal lives and doesn't always have time to personally respond to every single post that's made. That's what the "thanks" button is for. It acknowledges that your post has been read.
To accuse the other members here of being discrimanatory is simply not true. I'm not sure how that conclusion can even be made????
Yes, there are many different nationalities represented here but we take great strides to keep everything fair and unbiased.
I'm really sorry you feel the way you do. I hope you'll take another look around here and give it another chance to work for you.