Abby,
Hang in there. I certainly understand the frustration of seeing many neurologists, yet not able to obtain a definitive diagnosis. Do keep your appointment with your doctor, even if your symptoms have not drastically worsened.

I can't even count the number of neurologists I saw over a span of 7+ years, who couldn't really put all the pieces of the puzzle together, so would default to the status quo. It finally took a neurologist who recognized my atypical presentation AND recognized her discomfort with deciding a course of action without additional consultation. She encouraged me to be evaluated at Mayo and that was a positive experience.

I know here on the board people have had both good and bad experiences at Mayo, so being referred there is not always a guarantee that the medical mystery will be solved. But it often does help to have a fresh eyes on the subject. JMHO PM me if you want additional info on Mayo.

Cate