Hello Wondergirl, I haven't been on in a few weeks, but your post caught my eye. I'm in the process of being diagnosed and it sounds like you are too.

My eye doctor wants me to start on Mestinon on a trial basis to see how I respond. My tests thus far have been negative, but I do have ptosis, muscle weakness on exertion, shortness of breath, and difficulty chewing. Anyway, she has referred me to a neuro, but I can't get in until September. If you don't mind me asking, who put you on the Mestinon? Was it an eye doctor or a neuro? Have you had any positive test results?

I have heard of people going to the doctor after fatiguing themselves. In fact, in the past, I tried it myself. At this point, I don't believe I could safely do that though. I mean, my symptoms have progressed so much that I'd might take a while for me to recover. So, be careful if you are considering that.

Good luck.