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Member
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Join Date: Feb 2010
Location: Southern Coast of Virginia
Posts: 146
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Member
Join Date: Feb 2010
Location: Southern Coast of Virginia
Posts: 146
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I think I posted to you before re: this elsewhere. I was diagnosed with vasovagal syncope prior to my injury and RSD diagnosis. Ironically, I haven't had any episodes recently, most likely since I'm confined to a wheelchair and spend quite a bit of time in bed. Well, I take that back. I had an episode during one of my sympathetic blocks (they were able to track it thankfully since I was hooked up to monitors at the time), but they pushed some meds quickly (epinephrine, I think, but not positive) and I was fine.
At any rate, not sure whether it's much help, but I'd be interested to know more regarding the possible comorbidity of the two diagnoses.
I truly feel for Alli. At least in my family (three of my sisters have also been diagnosed), we are all triggered by pain, and none of us have outgrown it.We have, however, learned to manage it for the most part thankfully.
Personally, I'd be quite concerned about a neurologist who isn't familiar with RSD, and doubly concerned regarding his insinuation that this is caused by hysteria. Can you get a second opinion by chance?
Hugs. It's difficult enough to have this as an adult. I can't imagine a teenager affected by it.
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