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Member
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Join Date: Jul 2009
Location: Cincinnati, Ohio
Posts: 102
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Member
Join Date: Jul 2009
Location: Cincinnati, Ohio
Posts: 102
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For my ocular MG, my neuro started me on Prednisone 40mg and Mestinon. I saw almost immediate results the first day. Gradually reduced the Prednisone over 3 months and then I was off it for a month. After a month double vision came back very bad, so he started me back on Prednisone beginning with 5mg and working way up. Didn't help this time and then I got other symptoms. Had plasmapheresis and surgery to remove my thymus. Second time it took me 5 months to taper off Prednisone. I've been off it since mid-April and have just been taking Mestinon. I can't shake the feeling that one day I'll wake up with the double vision back. Mine gets very bad and I can't drive safely.
Good luck with your decision. I don't like being on the Prednisone, but it does work, at least for me.
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