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Grand Magnate
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Join Date: Aug 2006
Posts: 4,440
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Grand Magnate
Join Date: Aug 2006
Posts: 4,440
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I can't
take a shower without it feeling like hundreds of needles on my feet. Therefore the spray is directed away from my feet. It also has to be a lukewarm shower and I do not shower for very long. Not for more than 5 minutes or so. And I never wash my hair in the shower anymore. I would never be able to stand with eyes closed or otherwise for that matter. And I do not want to sit and do it. So I wash my hair in the kitchen sink.
I also cannot stand bedsheets hanging on my feet. I cannot stand my knees touching each other when I lay on my side (use a little pillow which helps a tad). I cannot stand my foot laying on the other foot. Certain clothing such as jeans with a thick seam are not good. Shoes (I only wear one kind now for years) are difficult to wear if they aren't the kind I wear. And, I absolutely have to wear shoes or slippers when out of bed otherwise it's like walking on bones, stones, you name it. Not a good feeling at all and can't be tolerated. My whole body is very, very sensitive.
This is all due to CMT which affects the Peripheral Nervous System (PNS). People with CMT are all different but this will never get better no matter what. It will just get worse. There is no cure/treatment, etc.
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Kitt
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"It is what it is."
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