Hi I completely understand what your going through except the pain is in my thighs. I have been woken up in the middle of the night screaming in pain and my thighs are very sensitive aswell as the palms of my hands and the soles of my feet. I have ended up in a wheelchair within 7 months of the onset of the symptoms! The cause of my problem has not been found yet but I hope for yours and my sake that there is help and pain relief. Xxx