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Old 08-04-2010, 01:12 PM
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smae smae is offline
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Join Date: Jul 2010
Posts: 458
10 yr Member
smae smae is offline
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smae's Avatar
 
Join Date: Jul 2010
Posts: 458
10 yr Member
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While I won't say "I totally understand" (tangent: I HATE when people say that--we are two different people in two different circumstances... you don't know what I go through and I don't know what you go through)... I do know the frustration of pain.
I also have chronic back pain (since I was 8--I am now 24, so 16 years). I also get migraines, and have large and small fiber neuropathy. It is very difficult.
I'm sorry you are having such trouble. Is there any way you can travel a little farther and get in sooner in another town? You may want to check into that--it would be worth it. That's the only suggestion I have for you in regards to that, but it may be an option. November is a long time from now--and if you can get in sooner, you may be able to get relief sooner.
I have been on all kinds of medicines, and they don't work for me. My pain is much too strong, and I do not respond to any medicine.
Large fiber neuropathy also includes motor and balance issues--so be thankful that you don't have that part of it. I have real issues with falling down and whatnot.... so there is one positive for you!
If you ever want to talk, feel free to message me. Like I said, I don't know exactly what you are going through, because we are two very different people... but I am in a lot of extreme, chronic pain as well... the only thing I am very thankful for is that I have been able to remain hopeful and I have not struggled with depression. I have a large support system of family and friends and have a strong faith in God. I also have a CaringBridge journal that I write in almost daily that helps me greatly. Depression goes hand in hand with chronic pain and illness--and I'm thankful that I do not deal with that (though, I have in the past, for many years--I just don't currently).
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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